Mar 9, 2012

Cerebral Palsy and Puppy Confessions


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I confess....
This week SUCKED!

I confess....
I didn't know it would be this hard to have our dog die. But our house seems empty without our beloved Sierra here.

I confess....
To add insult to injury NEIS is trying to end Mark's services early because they are under funded jerks that are trying to kick out any kid who is mild. You need a 25% delay in two areas or a 50% delay in one area. There is an argument among the "experts" as to how large of a delay he has in his fine and gross motor skills.

I confess....
If they cancel his services, I would lose my support system and I would have to pay for his therapy and find new therapists. Which is annoying since our team has been in place since Mark was 4 months old. I knew this day was coming but I thought it was coming in November.

I confess....
His neurologist says that having a mild case of Cerebral Palsy is a blessing wrapped in a curse since it's almost impossible to get services for your child.

I confess....
I'm trying to be grateful for the last two years of free services but it isn't going very well right now.

I confess....
Thankfully I have his PT going to bat for him. Not only is she adamant that he needs to stay in the system but that he needs to have his PT and OT increased since he is starting to fall behind again.

I confess....
It hurts my heart in ways I never knew possible to hear that he's falling behind again.

I confess....
I HATE THAT I HAVE TO WAIT UNTIL NEXT WEEK TO SEE WHO WINS AND KNOW MARK'S FUTURE. (I will appeal if they kick him out. I'm at least going to go down swinging.)

****Update*****
Mark continued to get services after his testing was done and he had more than 25% delays in 3 areas. His case worker still tried to have him kicked out and I had to file a complaint against her.

Who could be mean to me?

I confess....
These pictures show you the difference between my twins.
You'll notice that Mark just eats his cookies.

And that my little type a Molls has to take the cookies apart and put the two chocolate cookies together and the two vanilla cookies together.


I confess....
I'm really looking forward to date night tonight. Apparently when your dog dies and NEIS tries to take all your son's services away from him you get a date night out of the house.

I confess....
It might takes a few glasses of wine to pull me out of my funk so I can enjoy my rare night out.

I confess....
I'm OK with that.


2 comments:

  1. I am so sorry to hear what a shitty week it has been...as exhausting as it is, parents are the only real advocates for their children...fight to the end! (I know you will!)

    Have a wonderful time out, TRY not to think about this crap and have a good time! Easier said than done but you DESERVE it damn it!

    :) Will be thinking about you!

    ReplyDelete
  2. wow what a week. i am so sorry. you need some good news so i will be praying for ya!!

    thanks for linking up your confessions, i hope your weekend is fabulous!!

    ReplyDelete

 
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