Oct 26, 2012

Confessions on Mark's Progress

I confess....
I've had a crazy busy week with Mark and his endless appointments. We are transitioning out of early intervention and hopefully moving over to the school district.

I confess....
I had one appointment on Monday at 8:30 and I had to bring all three kids since that is a difficult time for me to get a sitter. I had to leave at 7:40 to get there on time since it's across town and I got the pleasure of battling two of our three freeways to get there. (And yes a city with 2 million people has 3 freeways.)

I confess....
I was annoyed when they tried to add one of my Wednesday appointments to Monday. I have three kids with me, on Wednesday I had a sitter for the girls. I said no politely, but they decided that my wishes were not their problem.

I confess....
I wanted to scream when I found out that the school psychologist took Mark to see the Nurse even after I said no. But then again, this is the government and we all know that my wants and needs are not actually something they care about.

I confess....
I walked into the nurse's office and the first thing she said to me was "well I know why your son is here, it's because of his terrible behavior." Not good!

I confess....
I hate that nurse!

I confess....
I don't care how terrible my son's behavior is, find a nicer way to tell me. And way to go lady, you spent 10 minutes telling me how horrible my son is right in front of him. Just because he doesn't talk doesn't mean that he cannot understand you.

I confess....
We also had our last PT appointment with early intervention this week. I'm very sad about that. It was an emotional visit for me. He's been in early intervention since he was 4 months old, leaving them is very hard for me.

I confess....
We also saw a new neurologist this week since our old neurologist doesn't accept our new insurance. He was nice enough, but he doesn't sugar coat anything. At one point he looked at me and said "this kid needs alot of work."

I confess....
I'm not ready to talk about the visit just yet but it didn't go well. Several tests have been ordered and a new neurological diagnosis is in Mark's future. I'm not going to lie, this is not an easy time for us.

I confess....
So far Mark only has 2 appointments for next week, which is better than the 6 he had last week. The poor kid missed a few naps and passed out cold in the car twice.

How do kids sleep like this?

Confession is good for the soul, what are you confessing this week?

2 comments:

  1. Wow, what a hard week. I'm here if you need to talk!

    ReplyDelete
  2. Oh how terrible :( You and Mark and your family are in my thoughts. I'm so sorry. It breaks my heart to hear about the nurse talking to you and him like that. I understand where you are coming from about having doctors just put it all out there without any reservations.

    ReplyDelete

 
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